About the Foundation
Bringing Hope Through Science, Support, and Connection.
Situs Foundation is a nonprofit organization dedicated to supporting families affected by Situs Inversus — a rare congenital condition in which the internal organs are mirrored from their normal positions.
Our mission is to advance medical research, raise awareness, and offer resources and compassionate outreach to families navigating this unique diagnosis. We believe every family deserves answers, support, and community.
Projects & Outreach
Awareness Campaigns
Awareness is vital for rare conditions especially so for those with situs inversus. We promote awareness campaigns through our donations, education, and outreach.
Family Counseling
By providing situs story sharing circles and support groups- our goal is to help alleviate the stressors of a new or known rare diagnosis by providing a safe space for sharing rare experiences.
Medical Research
We actively support scientific studies and creation of a database for research focused on situs inversus
Link for recruiting research clinical trial
Education & Resources
Key Facts:
- It occurs in approximately 1 in 10,000 people.
- Some individuals live without symptoms, while others may face complications related to the heart, lungs, digestive system, and spine.
- In certain cases, it is associated with Kartagener Syndrome or Primary Ciliary Dyskinesia, affecting respiratory function and fertility.
FAQ's
Situs Inversus is a rare condition where a person’s internal organs are arranged as a mirror image of the typical layout. For example, the heart may be on the right side of the chest instead of the left. It’s usually present from birth and affects less than 1 in 10,000 people.
In many cases, Situs Inversus alone does not cause health problems, and people can live normal, healthy lives. However, some individuals may have associated heart or organ conditions that require medical attention.
Situs Inversus is often discovered during imaging tests like X-rays, ultrasounds, or CT scans — sometimes by accident. In newborns, it may be identified shortly after birth if doctors notice unusual heart sounds or other signs.
It can be. Situs Inversus may occur as part of a genetic syndrome, such as Primary Ciliary Dyskinesia (PCD), which can be inherited. However, not all cases are linked to family history. Genetic counseling may help families understand inheritance patterns.
New Diagnosis Guide (PDF)
just beginning their journey.
Understanding Situs Inversus (Video)
A 2-minute animated explainer
for patients and families impacted.
12:00 PMMake a Difference —Donate Today
Your support helps advance critical research, provide life-changing resources, and offer emotional and educational outreach to families facing a Situs Inversus diagnosis.
Every contribution — large or small — brings us one step closer to a world where families feel seen, supported, and empowered.
What Families Are Saying
Emily R.
When our daughter was diagnosed with Situs Inversus, we felt overwhelmed and lost. The Situs Foundation gave us the information we needed and reminded us we weren’t alone.
James and Maria L.
Joby M.
Thank You SITUS Foundation Inc & Dana. Received mine day before yesterday.
Emma B.
Just received my little ones medical band, absolutely perfect, thank you so much
Emma J.
Thank you so much for this bracelet, it will give me piece of mind when she’s at nursery and school that she has something on her which identifies her condition xx
Katelin M.
SandrayJ.
Ana W.
Emily R.
When our daughter was diagnosed with Situs Inversus, we felt overwhelmed and lost. The Situs Foundation gave us the information we needed and reminded us we weren’t alone.
James and Maria L.
Joby M.
Thank You SITUS Foundation Inc & Dana. Received mine day before yesterday.
Emma B.
Just received my little ones medical band, absolutely perfect, thank you so much
Emma J.
Thank you so much for this bracelet, it will give me piece of mind when she’s at nursery and school that she has something on her which identifies her condition xx
Katelin M.
SandrayJ.
Ana W.
Ruth K.
Sandra
Muchas gracias!que tengas buena semana tú también
Charleigh B.
Thank You so much for your kind donation of the bracelet
Shelby W.
We would love to highlight the SITUS Foundation Inc They are newly founded and an incredible resource for families who face this rare disease and I’m so so happy they are shining a light on the unknown.
